Lou Diamond

you are an inspiration. I am 29 years old and have the same condition amongst other things. I married last year and the wedding nearly killed me. my husband is forces and things are tough. I wake up some days and wish I hadn't. I don't know if you read these comments at all but to all the people suffering, you are an inspiration. not only to keep us fighting, but also spreading the word about this debilitating condition. stay strong. lou xxx